A Beautifully Chaotic Life


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I’ve lived a beautiful life, and even though I know my countdown has begun earlier than most people, I am ok with it- the majority of the time. Fact is the kid who had a blasé outlook for so long is absolutely loving life. However, on the way home from the Tool concert, I lost it talking to my buddy.

He saw a side of me few do-the raw, unpolished, unprepared guy whose truest emotions rest at the bottom of God’s murky filled cauldron of mystery stew. My batch is good on salt big guy. Every once in a while though the angel stirring the pot is out smoking or on a more important call-lord knows there is enough tragedy and pain on this planet, it’s a wonder dinner is ever served. Point is, that calm, collected demeanor sticks to the bottom sometimes and I scream out unrehearsed material -which goes like this – “I don’t want to fucking die yet. It’s too early!”

Obviously I am still here, but I felt human the other night at Tool. Maybe diseased  or a cancer-ridden  human is more accurate. The metastasized bone cancer areas made their presence known on a couple hour drive. My last vertebrae is affected, as well as areas in my pelvis, meaning sitting hurt. Talk about something we take for granted. “I don’t want to fucking die, and I don’t want to feel so much pain just fucking sitting.” I don’t get both right now, so the living part will be the better play. Tomorrow when I meet with my hospice nurse, my pain meds may go up again. 300mg of extended-release morphine twice a day and 20mg of immediate release hourly if needed put most of my body at peace, but now there’s this, so 400mg, here we come probably.

I had someone tell me how lucky I am to be getting so many opiates. I won’t be speaking to that cretin anymore. “Yeah, I’m blessed- Look at that, I have some leftover chondrosarcoma, lung and bone cancer there’s plenty to spare. Lucky for you my mom raised me to share.” Speaking of lung cancer, 4 flights of stairs at the parking garage and I could barely breathe to curse the cheap bastards for saving  a dime on no elevators. I needed oxygen, desperately. I’ve never felt that before unless someone knocks the wind out of me. It’s a race of ironies, because  needed it as fast as possible, yet had to pace myself between a narcoleptic snail and a Xanax addicted 3-toed sloth.

By far the worst thing though was the other 5 people I was with-they wanted to do something. As I sat breathing in my oxygen, I began to sob. I just can’t keep up with regular people-I’m sick. I’m slowly dying.

I told one of them about it, and through his Russian accent, I remember him telling me that it was cool, not to worry about it. I was there wasn’t I? Isn’t that the important thing? I was fucking there, and that is a beautiful thing. I turn 43 Wednesday. Pearl Jam plays here on April 8th. It would be the 25th show I’ve seen them, and plan on seeing them.

My life has been a wonderful experience. I’ve truly lived it, through all the pain and bs, nothing has stopped me. I saw Game 1 of the 1992 Stanley Cup Finals. I’ve been halfway around the world, countless countries and historical monuments, like Ankgor Wat in Cambodia, Mayan ruins in Tulum, Stanley Cup and a Steeler  victory parades. On and on with the sights, but then there’s the people through all of it. From Mario Lemieux Christmas shopping at Kaufman’s. As a boy, Jimmy “Superfly” (sadly a Murderer) Snuka, to my guys on the railroad tracks, having their deep philosophical conversations on everything from politics to what dog looks strong in the 8th race at the kennel club. The amount of awesome in my life is just humbling.

I got this text last night and cried like a baby who had his Twinkies stolen. Do babies eat Twinkies? Not important.

You’re the man. I appreciate your strength more than you know. It was a good time. I’ll be back sometime this week.

Funny thing, he taught me how to be that man.

Peace & Love-
MFJ

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